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ISOP Stories - Infantile Scoliosis |
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Cole was born on January 3rd, 2008, 1 hour before his due date, after an uncomplicated pregnancy and delivery. He received 10’s on his APGAR. The only funny thing about him was that his foot was bent up so his toes touched his calf. They reassured us that it was just because I was very tiny throughout my pregnancy and he must have been cramped. Otherwise there didn’t appear to be any problems. (continue...)
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Marcela is one of the happiest little girls you’ll ever meet. Since the moment she was born in May of 2008, she was not only the happiest of babies, but also the most serene. Nothing ruffled Marci’s feathers—not even the horrible acid reflux she began battling as soon as we arrived home from the hospital. (continue...)
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Our baby came into the world on January 9, 2009. She was perfect, a petite little doll. From the beginning whenever she was laying down or holding her she always seemed to be curled up in a ball. We thought that must just be a comfortable position for her after spending the past 9 months in (utero) a little ball in mommy’s tummy. We shrugged it off. She was also a baby that spit up alot, which got worse when we started her on formula. Concerned we took her to the doctor to have her checked out. Doctor sent us for a GI series – which did not show any gastric abnormalities. She was diagnosed with reflux and given Reglan and switched to special formula. (continue...)
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Isabella was born in April 2006 by c-section. She was full term and weighed 8 pounds 4.5 ounces and was 21 inches long. My pregnancy was what I would call a perfect pregnancy. I had no complications and felt great the whole time. There were also no complications with the delivery. (continue...) |
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Our daughter Bridget was born on the 22.2.01. She is the fourth child in our family and her two brothers and one sister were over the moon at having a new addition to the family.
Bridget spent her first year drowning in the attention of her siblings. She sat on her own at about 8 months and it was at this time that I noticed she seemed to sit more on her left buttock. Looking back at photos she also had her head turned to the right in most photos, though I did not pick that up at the time. (continue...) |
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Makenna was born on March 27th, 2007 weighing 5 lbs, 3 oz. Although this perfect, beautiful, baby girl was born four weeks early, she passed the newborn tests with flying colors. At about three months, I noticed that her eyes were not tracking from right to left. We were referred to a pediatric ophthalmologist who ordered an MRI of her brain. (continue...)
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My son Finn is the very essence of the word strength. He is also determined, witty, and charismatic. For in his three short years he lives his life with the wisdom of an old soul. He has struggled and he has rallied. His life has not been one of ease but he has blossomed into a thriving, energetic young boy. (continue...)
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Our son Evan was born on March 20, 2006. We could not believe how beautiful he was, and there was no missing his gorgeous eyes. We really weren’t aware that anything was wrong with his back until his 4-month regular check-up. His doctor noticed that he had a slight head tilt and wanted to get an x-ray of his neck. Because he was so small, when they took the x-ray of the neck, they also caught a portion of his spine on the film. (continue...)
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We were blessed with a beautiful baby girl on September 22, 2006. My husband and I were delighted, as was her 2 year old big brother Samuel. Sophia was a healthy, full term infant. However, despite our best efforts to protect her during cold and flu season, she kept getting pneumonia and was hospitalized for it the first time at 2 months old. She also had recurrent atelectasis, which is the collapse of part of a lung caused by a blockage of the air passages (bronchus or bronchioles) or by pressure on the lung. (continue...) |
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After 5 years of trying to have a baby, God blessed us with twin boys. My pregnancy was full of uneasy feelings and lots of “what ifs”. There were many complications along with 3 months of bed rest. After the danger point passed, the doctors sent me home. One week after being home I went into labor.
Ryan and his fraternal twin brother, Matthew, were born in April 2005. They were born 4 weeks early, both were healthy. Our boys came home 2 days later.
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Hadley was born in May 2007. She was born perfectly healthy. Around the age of 5 months, I (mom) saw that one side of Hadley’s ribs were bulging out. I showed my husband, and he thought she just had more muscle strength on that side from learning to sit. Hadley’s head also tilted to one side, and we were told she had torticollis. We were not overly concerned with this diagnosis, since our other daughter also had this. At Hadley’s 6 month appt., my husband thought we should show the doctor Hadley’s back to make sure everything was normal. The doctor looked at it and agreed that Hadley’s ribs were bulging out on one side and she referred us to the local Children’s Hospital. (continue...) |
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Dylan was born in October of 2006. He was born 3 months premature for unknown reasons. I had no complications during the pregnancy, but started dilating and having contractions at 25 weeks. I was put on bed rest for 3 weeks and took terbutaline to try and stop the contractions. At 28 weeks, the labor could no longer be stopped. Fortunately, the doctor had given me corticosteroids a couple days prior to his birth which helped develop his lungs quicker and he had a pretty smooth course through the NICU. (continue...)
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Rylie was born January 29, 2006, full term by cesarean section. She was a healthy 5lb 14oz little girl. Three weeks after Rylie was born my mother brought to my attention that Rylie kept her head tilted to the left. I took her to see the pediatrician who confirmed she had Congenital Torticollis and referred her for physical therapy. At 10 months old the torticollis had resolved, however Rylie still had a very obvious hump on the left side of her back. The physical therapist thought it was a muscle, however I myself had progressive adolescent scoliosis and my gut told me it was not muscle. I scheduled an appointment with a Pediatric Orthopedic doctor at our local children’s hospital. Rylie was 10 months old at the time of her visit. (continue...) |
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After having four daughters, we were thrilled to learn our fifth child was a boy. His pregnancy and birth progressed in a typical manner, and we welcomed him into our family in July of 2007.
As a newborn, Jackson was sensitive to any dairy I would eat and began projectile vomiting. He was evaluated at St. Louis Children's Hospital and diagnosed with reflux. Because he would aspirate if he was laid flat to sleep, we had him sleeping in a semi-upright position in his infant car seat. (continue...) |
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Evan was born August 7, 2005, four weeks early, but overall, a wonderfully healthy baby boy. As a mother, I thought that my baby boy was just perfect! I did, however, notice that his ribs did protrude quite a bit on both sides. I attributed this to him being a chunky little boy! A very dear friend of mine discovered at four months old that Evan displayed some characteristics of scoliosis and we referred this concern to his pediatrician. (continue...) |
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Madison was born full term by cesarean section on August 26, 2003. At birth, her pediatrician noticed a click in her left hip. An orthopedist was called in, and she was immediately placed in a Pavlic harness. She wore this removable brace 24/7 for three months. Under no circumstances, we were told, should it be removed. Finally, when she was three months old, I gave Madison her first bath and noticed the hump in her ribs. (continue...) |
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Breann was born in 1997. She was approximately five weeks premature and weighed 2420 g length 49 cm, head Her Apgar scores were 8. She was noted to cry spontaneously but her color remained dusky and she was given blow-by oxygen followed by mask CPAP because of diminished breath sounds. Following these interventions she improved in color. Because of her prematurity, ongoing oxygen requirement, and apnea she was taken to the newborn intensive care unit and placed in an oxygen-concentrating hood.(continue...) |
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Brooke was born on July 7th, 2001. At 4 months old, intuition told me something was not quite right.
At 6 months old, I noticed that her back was curved slightly. My father and her father both agreed.
I called the pediatrician and was seen the next day. At the appointment, we asked about scoliosis. We were told no, but to ease our minds an x-ray was taken. They called later that day to say that Brooke indeed, had scoliosis. At the time her curve was measured at 27 degrees low thoracic, and 20 lumbar. (continue...) |
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Updated November, 2006
After two years of extensive research, I was finally able to locate the only person on the planet willing and able to help my child. Unfortunately, he lives in France. Luckily, I made contact with him before he retired in June 2000. His recommendation was for a procedure considered experimental, and not commonly practiced in the U.S. It consists of halo traction, a specialized, two-piece, adjustable plaster cast with turnbuckles, and Bi-Pap breathing exercises. The combination procedure was performed on October 2, 2000 on 2 ½ year old Olivia & 3 1/2 yr old Breann at the Shriners Hospital in Salt Lake City, Utah. (continue...)
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Updated March, 2008
Kylie Anne Lether was born August 8, 1997 in Salt Lake City, Utah. She weighed 6lbs. 10oz. and was 21 ½ inches long. She was born with Infantile Idiopathic Scoliosis and Developmental Hip Dysplasia. Her back had a big hump on the left side, which was her spine lifting her shoulder blade up. Her hip sockets were straight instead of curved and there were no femoral heads. Doctors are sure both of these problems were caused by the way she was positioned and had ran out of room in utero. Kylie was full term, breech and on a diagonal facing outwards. I was told that she had to have been in that position for quite some time to have caused such damage. (continue...)
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Updated January, 2008
Siobhan was born June 9th 1999 in Vancouver, Canada, 4 days late. Her birth was normal. We noticed at about 4-6 months old that she didn’t bear weight and, when her feet were on a flat surface, they pronated (rolled inwards) quite severely.
Our family doctor sent her to see an orthopedist at our Children’s Hospital, who explained that she would need orthotics when she started walking. Then, upon closer examination, he remarked how long her fingers and toes were. He referred us to a genetic doctor to have Siobhan checked for the Marfan syndrome. (continue...) |
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Cole was born at 36 weeks gestation as a healthy and happy 4.5 lb. baby on March 9, 2005. He has a fraternal twin brother named Jack who does not have any signs or symptoms of infantile scoliosis. At around 4 months of age, we noticed that Cole's chest wall seemed to protrude quite a bit. We didn't think too much of it, but at his 6 month pediatrition check up we pointed it out to the doctor. She turned him on his stomach, and we then noticed a few small folds on the right side of his back. She immediately referred us to a pediatric orthopedic surgeon who specializes in scoliosis.
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Updated March, 2008
Jake was diagnosed with infantile scoliosis at 3 ½ months old when an x-ray was taken to rule out pneumonia. My maternal instincts, however, told me something was not quite right before that. While holding him in my arms, burping him, and bathing him, I could feel that his little spine was bent. But I told myself that I was being paranoid--that he was just a baby he and just wasn’t very strong yet. The x-ray that confirmed our fears showed two curves: a right thoracic curve that measured 20° and a left thoracolumbar curve at 19°. (continue...)
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Our beautiful little boy was born on the 3rd of November 2002. He was our first child and he looked absolutely beautiful. The midwives felt Nathan looked blue and was too labored in his breathing. He was taken straight to Princess Margaret Hospital (the children’s’ hospital in Perth) where he was intubated immediately, with wires and tubes coming out of his navel and lines in his arms. To see my baby the next day on a ventilator was horrific. (continue...)
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Nick was born in Las Vegas in the fall of 2000. The pregnancy was without incident, until the time of delivery. My OB had decided Nick was too big, his head was in the right spot, and he was ready to come out. She (my Dr.) wanted to induce labor, so we showed up at the hospital as scheduled. Once we got there though, the nurses made no secret of the fact that they disagreed with my OB, who was not present. They said I wasn’t ready, the baby wasn’t too big, and that I shouldn’t be there. (continue...)
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Updated March, 2008
Our son Ian was born on August 15, 2004. He was a full term baby and
appeared to be a very healthy baby boy. Just before his 6 month well-baby
check up, he began to sit up on his own. At that time, I noticed that the "muscles" on one side of his back seemed to be really big and he always
leaned to one side, but I just chalked it up to him just learning to sit.
When we brought him in to the pediatrician for his 6-month visit, she
noticed that something seemed wrong with his back. She didn't know what it
could be, so she brought in another doctor to look at him. (continue...)
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